Status Epilepticus

Patricia Cardoso Pastura

Abstract


A girl born with central nervous system malformation is in the pediatric intensive care unit due to epilepsy. It is difficult to treat convulsions without sedating her. What can she feel? What can she hear? She is always asleep and her eyes remain closed. The parents are vulnerable, sad, desperate. In this text her life is told in a strange cadence of days until the first birthday. Then the story gets to the end.


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We wish to acknowledge the financial support of the Canada Council for the Arts, the Munk School of Global Affairs, and Mount Sinai Hospital.

Canada Council for the Arts
Munk School of Global Affairs
Mount Sinai Hospital