Translations
Keywords:
Loeys-Dietz syndromeAbstract
This essay explores the relationship between the mother of a child with a rare syndrome and the evolving findings in the medical literature.
This essay explores the relationship between the mother of a child with a rare syndrome and the evolving findings in the medical literature.
About the Journal
Ars Medica is one of Canada’s first health humanities journals. Launched in 2004, we transitioned in 2014 to a web-only format. Ars Medica provides an online venue for dialogue, meaning-making, and the representation of experiences of the body, health, wellness, and encounters within the medical system. Content includes narratives from patients and health care workers, including fiction, creative nonfiction, poetry, and visual art. We also include sections on writing by and about children, international health, and other voices routinely silenced in the healthcare system.